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Cognitively Fabulous

Lately I have been working on getting back as much of my cognitive skill as possible, and reestablishing basic daily routines with rest as friend, not foe. I have to move more slowly and learning to do...

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Sanford and Sums

This weekend my wife is taking an adaptive yoga training with Matthew Sanford. Have you heard of him? “It took a devastating car accident, paralysis from the chest down, and dependence on a wheelchair...

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If the car runs hot, so will I.

*Not literally. In fact it’s more that the literal word DISABILITY flashes through my mind’s stage. It’s a tall serif, distorted and looming with an iced coat of purple and orange. Thanks, synesthesia,...

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Nobody Needs a Second Dinosaur

Today I woke a little extra early so we could take advantage of the beautiful weather between the wife’s jobs (she’s a yoga instructor… and if I happen to be repeating myself here, well, shucks. Blame...

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So… YOU think you can dance?

Dance is a language I understand, but cannot speak. I lost 100lbs with private intentions of finding dance classes as reward for that particular long haul. I’m a little embarrassed, really, to admit...

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Quick “spell” post

I feel together in my head but my body feels weeping, as rain inside a hollow earth. I have trouble focusing on more than one task at a time (which is why I bet this will be a short blog post because...

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BEST. COMIC. EVER.

I’ve long wanted to shake the hand of this comic, but now, too, he needs a firm high-five and my bear-like hug of appreciation.

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GRATITUDE ADJUSTMENT NEEDED NOW

So if your neurologist leaves you hanging without meds for 8 months, finds a bunch of new lesions, yells at you for having lesions, then spends another 7 months forgetting to get you back on the...

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More Good Than Bad

Rare photo of me looking up — I don’t always get to see the sky now. I’ve gotten so used to waking up every hour every night to use the bathroom that I’ve also become used to waking up a little mad...

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Rice to Meet You!

What this seemingly serene photograph belies upon sight is just how much is hidden underneath. I had been sitting in the kitchen with the day’s first cup of joe to prep all of dinner’s ancillary (but...

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Walking the Walk

Adaptive Yoga class ended again in tears — they are not sad tears, per se, and there’s become a normalcy associated with them because when 20lbs of sand are sat on my tied thighs I will, for the first...

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Walking Vision Photos

Accidental selfie is accidental Of course it’s going to get difficult and uncomfortable, but there are benches galore along the path at the Riverwalk and an unlimited number of natural photo ops while...

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Facing the Music (or, “More Scientific Proof I’m Not Insane”)

Thank you, science, for letting me know that I am not, in fact, psychotic. I’m pretty sure that I am not, and that I live an honest and relatively sane existence. The music I hear when nothing’s on,...

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More Thanks to Give

Today I didn’t use my cane. Today I didn’t need to use my cane. Today I actually didn’t even remember I needed it. I walked around the property with a yard crew, getting feedback on their progress and...

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Pobody’s Nerfect

Ok, deep breath. I know variables that contribute must be: The weather has been kind. 3 months into both, Gilenya and Ampyra are fully back in my system 2 months without gluten, and Moving into an...

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Today, I:

- Swept the house and bagged it all. - Cleaned the litterbox that lives on the first-story landing - Washed, put away the dishes - Pulled the dryer out of it’s cubby beside the washer, detached the...

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Good News v. Bad News (SPOILER ALERT: “Good News” wins)

BAD: Today I am fatigued and mostly in bed. Of course that still happens, and of course it happens after… GOOD: Yesterday I spent three (three!) hours walking around a festival of local artists and...

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The Evolution of “Free Time”

I shit you not, that is really me. I am wearing ice skates on the rink at Rockefeller Center. And also we got Michael C. Hall’s autograph. I mean.  We spent the weekend in NYC to see Michael C. Hall’s...

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This is How We Learn

Of course pepperoni isn’t gluten free. Gluten is in everything, and pepperoni is MADE OF EVERYTHING. Why didn’t I have logic at the ready in the face of hot bread I can eat covered in forbidden cheese?...

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The Cognitive Dissonance of Finding my Legs

To aid my nearly-complete pepperonicovery here is a list of 2 things that, when I realized were different, blew my mind a little: 1. Unlike New York last week, the weather had not called for layering...

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